This is my sweet little neice Avery. She was born on August 24, 2013 and was diagnosed with PKU just a few days after she was born. It is my hope that my ride across Canada will accomplish a number of things:
I hope to raise awareness regarding PKU;
I hope to advocate so that better coverage for medical food, formula and other treatments may be available to all of those who have PKU including Avery;
I hope to raise money that can go towards research and development of better treatment options and eventually a cure for PKU.
I hope to raise money for Canadian PKU and Allied Disorders (www.canpku.org
) to help them accomplish their goals and I hope to promote a sense of community for Canadians living with this rare disorder.